Changes for page data-curation-copy
Last modified by eapapp on 2023/07/04 16:46
From version 126.1
edited by spieschnik
on 2023/05/08 14:18
on 2023/05/08 14:18
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... ... @@ -99,23 +99,21 @@ 99 99 100 100 ==== **Sharing human data ** ==== 101 101 102 -We must ensure data shared on EBRAINS comply with [[GDPR >>https://gdpr-info.eu/]]and [[EU directives>>https://eur-lex.europa.eu/legal-content/EN/TXT/?uri=celex%3A32010L0063]]. The information we need to assess this is collected via our [[Ethics and Regulatory Compliance Survey>>https://nettskjema.no/a/224765]]. 103 - 104 104 (% class="box floatinginfobox" %) 105 105 ((( 106 106 For **Human subject data**, the data must be //either// 107 107 108 108 - Post-mortem data 109 - 110 110 - Aggregated data 111 - 112 112 - Pseudonymized subject data with a legal basis for sharing (e.g. Informed Consent) 113 113 114 114 (% class="small" %)//If you have human data that do not classify as any of the above, please get in touch and we will clarify the available options. // 115 115 ))) 116 116 117 - PseudonymizeddataissharedviatheHumanDataGateway(HDG)dueo GDPRregulations. TheHDGaddsan authentication layertothedata.113 +We must ensure data shared on EBRAINS comply with [[GDPR >>https://gdpr-info.eu/]]and [[EU directives>>https://eur-lex.europa.eu/legal-content/EN/TXT/?uri=celex%3A32010L0063]]. The information we need to assess this is collected via our [[Ethics and Regulatory Compliance Survey>>https://nettskjema.no/a/224765]]. 118 118 115 +Post-mortem and aggregated human data can be shared openly. Pseudonymized data is shared via the Human Data Gateway (HDG) due to GDPR regulations. The HDG adds an authentication layer to the data. 116 + 119 119 **Data users** must request access to the data (via their EBRAINS account) and will receive access provided they actively accept the [[EBRAINS Access Policy>>https://ebrains.eu/terms#access-policy]], the [[EBRAINS General Terms of Use>>https://ebrains.eu/terms#general-terms-of-use]], and the [[EBRAINS Data Use Agreement>>https://ebrains.eu/terms#data-use-agreement]]. The account holder also have to accept that information about their request and access to specific data under HDG is being tracked and stored. 120 120 \\**Data owners** must be aware that sharing under the HDG affects the legal responsibilities for the data. They must agree to joint control of the data (see the [[Data Provision Protocol v1>>url:https://strapi-prod.sos-ch-dk-2.exo.io/EBRAINS_Data_Provision_Protocol_dfe0dcb104.pdf]], section 1.4 - 1.5) and the Data Protection Officers of the responsible institutions must have accepted that the data can be shared under HDG. 121 121 \\The Human Data Gateway (HDG) was introduced in February 2021 and developed across multiple teams in the HBP. The initiative to create the service and the initial design originated from EBRAINS Curation in close collaboration with the Data compliance team and the HBP Data Governance Working Group. HDG is a response to the needs of multiple data providers who are bringing data of human origin to EBRAINS. HDG covers the sharing of a limited range of data of human origin, i.e., data without direct identifiers and with very few indirect identifiers (strongly pseudonymized, de-identified). It is an extension of the existing services and does not replace the future EBRAINS Service for sensitive data (planned for 2024) which is outside the domain of the current EBRAINS Data and Knowledge services. ... ... @@ -125,6 +125,8 @@ 125 125 126 126 === Step by Step - Models === 127 127 126 +(% style="color:#e74c3c" %){{mention reference="XWiki.adavison" style="FULL_NAME" anchor="XWiki-adavison-1rb0hn"/}} 127 + 128 128 [place-holder-process-diagram] 129 129 130 130 ==== **1. model step 1 ** ==== ... ... @@ -141,6 +141,8 @@ 141 141 142 142 === Step by Step - Code === 143 143 144 +(% style="color:#e74c3c" %)@Jan/Benni 145 + 144 144 [place-holder-process-diagram] 145 145 146 146 ==== **1. code step 1 ** ==== ... ... @@ -157,7 +157,7 @@ 157 157 === Webservices and metadata models === 158 158 159 159 (% class="wikigeneratedid" id="HContact...." %) 160 -(% style="color:#e74c3c; font-size:16px" %) Contact....(% style="color:#4a5568; font-size:16px" %)162 +(% style="color:#e74c3c; font-size:16px" %){{mention reference="XWiki.adavison" style="FULL_NAME" anchor="XWiki-adavison-np253c"/}}(% style="color:#4a5568; font-size:16px" %) 161 161 162 162 ---- 163 163 ... ... @@ -202,8 +202,7 @@ 202 202 ))) 203 203 204 204 205 - 206 -**Located in Germany:** 207 +\\**Located in Germany:** 207 207 208 208 [[image:My project (2).jpg||height="209" width="167"]] 209 209 ... ... @@ -223,6 +223,9 @@ 223 223 224 224 === **Improve your research product ** === 225 225 227 +(% class="wikigeneratedid" %) 228 +**{{mention reference="XWiki.adavison" style="FULL_NAME" anchor="XWiki-adavison-fkdv6h"/}}** 229 + 226 226 ==== **Add a tutorial or learning resource to your research product ** ==== 227 227 228 228 ==== (% style="color:#e74c3c" %)- Learning resource [information](%%) ==== ... ... @@ -240,7 +240,7 @@ 240 240 241 241 * Integrate image data with //the Mio viewer//: EBRAINS Multi-Image OpenSeadragon viewer provides an intuitive way of navigating high-resolution 2D image series. It has browser-based classic pan and zoom capabilities. A collection can be displayed as a filmstrip (Filmstrip Mode) or as a table (Collection Mode) with adjustable number of row and columns. See [[Mio viewer links available for this dataset>>https://search.kg.ebrains.eu/?category=Dataset&q=nr2f1#9677359c-73fa-4425-b8fa-3de794e9017a]] as an example. MioViewer user manual is found [[here>>https://multi-image-osd.readthedocs.io/en/latest/index.html]]. 242 242 * Integrate atlas-registered 2D image data with //the LocaliZoom viewer//: The EBRAINS LocaliZoom serial section viewer displays series of registered 2D section images with atlas overlay, allowing the users to zoom into high-resolution images and have information about the brain regions. See the [[LocaliZoom links available for this dataset>>https://doi.org/10.25493/T686-7BX]] as an example. LocaliZoom user manual is found [[here>>https://localizoom.readthedocs.io/en/latest/index.html]]. 243 -* Add your data, models or software to a// Live paper//: (% style="color:#e74c3c" %)[description] 247 +* Add your data, models or software to a// Live paper//: (% style="color:#e74c3c" %)[description] {{mention reference="XWiki.adavison" style="FULL_NAME" anchor="XWiki-adavison-62mbgl"/}} 244 244 * Integrate your data to //the Siibra//-explorer: The siibra-explorer is used for visualizing volumetric brain data in all the brain atlases provided by EBRAINS (Human, Monkey, Rat and Mouse). The siibra-explorer viewer uses siibra-api to enable navigation of brain region hierarchies, maps in different coordinate spaces, and linked regional data features. Furthermore, it is connected with the siibra toolsuite providing several analytical workflows. To learn more about how to integrate your data to atlases, check out the [[Atlas services>>https://ebrains.eu/services/atlases#Integratedatatoanatlas]] on ebrains.eu. 245 245 246 246 ----