Changes for page data-curation-copy

Last modified by eapapp on 2023/07/04 16:46

From version 128.1
edited by ingrreit
on 2023/05/23 17:57
Change comment: There is no comment for this version
To version 124.1
edited by spieschnik
on 2023/05/08 14:16
Change comment: There is no comment for this version

Summary

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Author
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1 -XWiki.ingrreit
1 +XWiki.spieschnik
Content
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99 99  
100 100  ==== **Sharing human data ** ====
101 101  
102 +We must ensure data shared on EBRAINS comply with [[GDPR >>https://gdpr-info.eu/]]and [[EU directives>>https://eur-lex.europa.eu/legal-content/EN/TXT/?uri=celex%3A32010L0063]]. The information we need to assess this is collected via our [[Ethics and Regulatory Compliance Survey>>https://nettskjema.no/a/224765]].
103 +
102 102  (% class="box floatinginfobox" %)
103 103  (((
104 104  For **Human subject data**, the data must be //either//
105 105  
106 106  - Post-mortem data
109 +
107 107  - Aggregated data
111 +
108 108  - Pseudonymized subject data with a legal basis for sharing (e.g. Informed Consent)
109 109  
110 110  (% class="small" %)//If you have human data that do not classify as any of the above, please get in touch and we will clarify the available options. //
111 111  )))
112 112  
113 -We must ensure data shared on EBRAINS comply with [[GDPR >>https://gdpr-info.eu/]]and [[EU directives>>https://eur-lex.europa.eu/legal-content/EN/TXT/?uri=celex%3A32010L0063]]. The information we need to assess this is collected via our [[Ethics and Regulatory Compliance Survey>>https://nettskjema.no/a/224765]].
117 +Pseudonymized data is shared via the Human Data Gateway (HDG) due to GDPR regulations. The HDG adds an authentication layer to the data.
114 114  
115 -Post-mortem and aggregated human data can be shared openly. Pseudonymized data is shared via the Human Data Gateway (HDG) due to GDPR regulations. The HDG adds an authentication layer to the data.
116 -
117 117  **Data users** must request access to the data (via their EBRAINS account) and will receive access provided they actively accept the [[EBRAINS Access Policy>>https://ebrains.eu/terms#access-policy]], the [[EBRAINS General Terms of Use>>https://ebrains.eu/terms#general-terms-of-use]], and the [[EBRAINS Data Use Agreement>>https://ebrains.eu/terms#data-use-agreement]]. The account holder also have to accept that information about their request and access to specific data under HDG is being tracked and stored.
118 118  \\**Data owners** must be aware that sharing under the HDG affects the legal responsibilities for the data. They must agree to joint control of the data (see the [[Data Provision Protocol v1>>url:https://strapi-prod.sos-ch-dk-2.exo.io/EBRAINS_Data_Provision_Protocol_dfe0dcb104.pdf]], section 1.4 - 1.5) and the Data Protection Officers of the responsible institutions must have accepted that the data can be shared under HDG.
119 119  \\The Human Data Gateway (HDG) was introduced in February 2021 and developed across multiple teams in the HBP. The initiative to create the service and the initial design originated from EBRAINS Curation in close collaboration with the Data compliance team and the HBP Data Governance Working Group. HDG is a response to the needs of multiple data providers who are bringing data of human origin to EBRAINS. HDG covers the sharing of a limited range of data of human origin, i.e., data without direct identifiers and with very few indirect identifiers (strongly pseudonymized, de-identified). It is an extension of the existing services and does not replace the future EBRAINS Service for sensitive data (planned for 2024) which is outside the domain of the current EBRAINS Data and Knowledge services.
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123 123  
124 124  === Step by Step - Models ===
125 125  
126 -(% style="color:#e74c3c" %){{mention reference="XWiki.adavison" style="FULL_NAME" anchor="XWiki-adavison-1rb0hn"/}}
127 -
128 128  [place-holder-process-diagram]
129 129  
130 130  ==== **1. model step 1 ** ====
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141 141  
142 142  === Step by Step - Code ===
143 143  
144 -(% style="color:#e74c3c" %)@Jan/Benni
145 -
146 146  [place-holder-process-diagram]
147 147  
148 148  ==== **1. code step 1 ** ====
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159 159  === Webservices and metadata models ===
160 160  
161 161  (% class="wikigeneratedid" id="HContact...." %)
162 -(% style="color:#e74c3c; font-size:16px" %){{mention reference="XWiki.adavison" style="FULL_NAME" anchor="XWiki-adavison-np253c"/}}(% style="color:#4a5568; font-size:16px" %)
160 +(% style="color:#e74c3c; font-size:16px" %)Contact....(% style="color:#4a5568; font-size:16px" %)
163 163  
164 164  ----
165 165  
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184 184  Phd Student
185 185  Neuroscience (M. Sc.)(%%)
186 186  (% class="small" style="color:#4a5568" %)**Neuroanatomy and data integration**
187 -)))|(% style="width:303px" %)(((
185 +)))| (% style="width:303px" %)
186 +(((
188 188  [[image:My project (1).jpg||height="209" width="167"]]
189 189  
190 190  **Ingrid Reiten**
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193 193  Phd Student
194 194  Neuroscience (M. Sc.)(%%)
195 195  (% class="small" style="color:#4a5568" %)**Neuroanatomy and structural connectivity**
196 -)))|(% style="width:303px" %)(((
195 +)))| (% style="width:303px" %)
196 +(((
197 197  [[image:My project1.jpg||height="209" width="167"]]
198 198  
199 199  **Sophia Pieschnik**
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204 204  )))
205 205  
206 206  
207 -\\**Located in Germany:**
207 +
208 +**Located in Germany:**
208 208  
209 209  [[image:My project (2).jpg||height="209" width="167"]]
210 210  
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224 224  
225 225  === **Improve your research product ** ===
226 226  
227 -(% class="wikigeneratedid" %)
228 -**{{mention reference="XWiki.adavison" style="FULL_NAME" anchor="XWiki-adavison-fkdv6h"/}}**
229 -
230 230  ==== **Add a tutorial or learning resource to your research product ** ====
231 231  
232 232  ==== (% style="color:#e74c3c" %)- Learning resource [information](%%) ====
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244 244  
245 245  * Integrate image data with //the Mio viewer//: EBRAINS Multi-Image OpenSeadragon viewer provides an intuitive way of navigating high-resolution 2D image series. It has browser-based classic pan and zoom capabilities. A collection can be displayed as a filmstrip (Filmstrip Mode) or as a table (Collection Mode) with adjustable number of row and columns. See [[Mio viewer links available for this dataset>>https://search.kg.ebrains.eu/?category=Dataset&q=nr2f1#9677359c-73fa-4425-b8fa-3de794e9017a]] as an example. MioViewer user manual is found [[here>>https://multi-image-osd.readthedocs.io/en/latest/index.html]].
246 246  * Integrate atlas-registered 2D image data with //the LocaliZoom viewer//: The EBRAINS LocaliZoom serial section viewer displays series of registered 2D section images with atlas overlay, allowing the users to zoom into high-resolution images and have information about the brain regions. See the [[LocaliZoom links available for this dataset>>https://doi.org/10.25493/T686-7BX]] as an example. LocaliZoom user manual is found [[here>>https://localizoom.readthedocs.io/en/latest/index.html]].
247 -* Add your data, models or software to a// Live paper//: (% style="color:#e74c3c" %)[description] {{mention reference="XWiki.adavison" style="FULL_NAME" anchor="XWiki-adavison-62mbgl"/}}
245 +* Add your data, models or software to a// Live paper//: (% style="color:#e74c3c" %)[description]
248 248  * Integrate your data to //the Siibra//-explorer: The siibra-explorer is used for visualizing volumetric brain data in all the brain atlases provided by EBRAINS (Human, Monkey, Rat and Mouse). The siibra-explorer viewer uses siibra-api to enable navigation of brain region hierarchies, maps in different coordinate spaces, and linked regional data features. Furthermore, it is connected with the siibra toolsuite providing several analytical workflows. To learn more about how to integrate your data to atlases, check out the [[Atlas services>>https://ebrains.eu/services/atlases#Integratedatatoanatlas]] on ebrains.eu.
249 249  
250 250  ----