Changes for page data-curation-copy

Last modified by eapapp on 2023/07/04 16:46

From version 155.1
edited by ingrreit
on 2023/06/05 10:46
Change comment: There is no comment for this version
To version 160.1
edited by ingrreit
on 2023/06/06 11:14
Change comment: There is no comment for this version

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30 30  
31 31  (% class="box successmessage" %)
32 32  (((
33 -**Particular needs? Contact us! **The workflows for sharing can be modified for researchers or research groups aiming to frequently publish larger numbers of their research products through EBRAINS. Please contact the curation service team in such cases
33 +**Particular needs? Contact us! **The workflows for sharing can be modified for researchers or research groups aiming to frequently publish larger numbers of their research products through EBRAINS. Please contact the curation service team in such cases. Reach us at [[curation-support@ebrains.eu>>mailto:curation-support@ebrains.eu]]
34 34  )))
35 35  
36 36  ----
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70 70  
71 71  This form collects the necessary information needed for us to evaluate whether we can ethically and legally share the data via EBRAINS.
72 72  
73 +See below for information about the ethical and legal aspects concerning sharing of human subject data.
73 73  
75 +
74 74  ==== **2. Upload data ** ====
75 75  
76 76  
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90 90  If a data collection is already uploaded elsewhere, we may link to the already existing repository.
91 91  
92 92  
93 -(% style="color:#1a202c; font-family:inherit; font-size:23px" %)**3. Submit metadata**
95 +==== **3. Submit metadata** ====
94 94  
95 95  
96 96  [[image:https://lh5.googleusercontent.com/WS4T2LhF9znWWChn3Z550agLrrb-KTWdYVsJSv0lh4cGjKbjuN1WV68WER9xkYqi1UqN7KYZz7bImYz3_TpOuTuvma7T192QUiUZoyJVPk1fj5NSDSQh_kpIeBufAOdDtsDRpPKK_P5EDPqRCTAaOTNyCw=s2048||height="91px;" width="91px;"]]**Submit metadata using the **[[EBRAINS Wizard>>https://ebrains-metadata-wizard.apps.hbp.eu/]]** (opt. 1), or through direct interaction with the Knowledge Graph (opt. 2) **
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129 129  
130 130  ----
131 131  
132 -==== **Sharing human data ** ====
134 +==== **Sharing human subject data ** ====
133 133  
134 134  (% class="box floatinginfobox" %)
135 135  (((
136 -**Human subject data that can be shared on EBRAINS consists of:**
138 +**Human subject data that can be shared on EBRAINS:**
137 137  
138 138  - Post-mortem data
139 139  - Aggregated data
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142 142  (% class="small" %)//If you have human data that does not classify as any of the above, please get in touch and we will clarify the available options. //
143 143  )))
144 144  
145 -Human data shared on EBRAINS must comply with [[GDPR >>https://gdpr-info.eu/]]and [[EU directives>>https://eur-lex.europa.eu/legal-content/EN/TXT/?uri=celex%3A32010L0063]]. The information we need to assess this is collected via our [[Ethics and Regulatory Compliance Survey>>https://nettskjema.no/a/224765]].
147 +Human subject data shared on EBRAINS must comply with [[GDPR >>https://gdpr-info.eu/]]and [[EU directives>>https://eur-lex.europa.eu/legal-content/EN/TXT/?uri=celex%3A32010L0063]]. The information we need to assess this is collected via our [[Ethics and Regulatory Compliance Survey>>https://nettskjema.no/a/224765]].
146 146  
147 147  Post-mortem and aggregated human data can be shared openly, given direct identifiers in the metadata are removed. Strongly pseudonymized and de-identified data can be shared via the Human Data Gateway (HDG).
148 148  
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295 295  == **Add practical value to your shared data, model or software** ==
296 296  
297 297  
298 -==== **Add a tutorial or learning resource ** ====
299 -
300 -(% class="wikigeneratedid" id="H-LearningresourceA05Binformation5D" %)
301 -(% style="color:#000000" %)//More information will follow//
302 -
303 -
304 -==== **Create a workflow** ====
305 -
306 -(% class="wikigeneratedid" id="H-Workflows5Binformation5D" %)
307 -(% style="color:#000000" %)//More information will follow//
308 -
309 309  ----
310 310  
311 311  === **Showcase shared data, models or software in other services** ===
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330 330  
331 331  ----
332 332  
324 +==== **Add a tutorial or learning resource ** ====
325 +
326 +(% class="wikigeneratedid" id="H-LearningresourceA05Binformation5D" %)
327 +(% style="color:#000000" %)//More information will follow//
328 +
329 +
330 +==== **Create a workflow** ====
331 +
332 +(% class="wikigeneratedid" id="H-Workflows5Binformation5D" %)
333 +(% style="color:#000000" %)//More information will follow//
334 +
335 +----
336 +
333 333  === **The benefits of sharing data ** ===
334 334  
335 335  By sharing your data via EBRAINS, you gain access to the following benefits:
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338 338  
339 339  
340 340  
341 -We support you to better follow the FAIR^^ ^^guiding principles for data management and stewardship{{footnote}}Wilkinson, M., Dumontier, M., Aalbersberg, I. et al. The FAIR Guiding Principles for scientific data management and stewardship. Sci Data 3, 160018 (2016). https://doi.org/10.1038/sdata.2016.18 {{/footnote}}.  Publishing data, models or code via EBRAINS will provide you with a citeable [[DataCite DOI>>https://www.doi.org/the-identifier/resources/handbook/]] for your research product.
345 +We support you to better follow the [[FAIR^^ ^^guiding principles>>https://www.nature.com/articles/sdata201618]] for data management and stewardship{{footnote}}Wilkinson, M., Dumontier, M., Aalbersberg, I. et al. The FAIR Guiding Principles for scientific data management and stewardship. Sci Data 3, 160018 (2016). https://doi.org/10.1038/sdata.2016.18 {{/footnote}}.  Publishing data, models or code via EBRAINS will provide you with a citeable [[DataCite DOI>>https://www.doi.org/the-identifier/resources/handbook/]] for your research product.
342 342  
343 343  ----
344 344