Changes for page data-curation-copy
Last modified by eapapp on 2023/07/04 16:46
Summary
-
Page properties (1 modified, 0 added, 0 removed)
Details
- Page properties
-
- Content
-
... ... @@ -70,9 +70,7 @@ 70 70 71 71 This form collects the necessary information needed for us to evaluate whether we can ethically and legally share the data via EBRAINS. 72 72 73 -See below for information about the ethical and legal aspects concerning sharing of human subject data. 74 74 75 - 76 76 ==== **2. Upload data ** ==== 77 77 78 78 ... ... @@ -131,11 +131,11 @@ 131 131 132 132 ---- 133 133 134 -==== **Sharing human subjectdata ** ====132 +==== **Sharing human data ** ==== 135 135 136 136 (% class="box floatinginfobox" %) 137 137 ((( 138 -**Human subject data that can be shared on EBRAINS:** 136 +**Human subject data that can be shared on EBRAINS consists of:** 139 139 140 140 - Post-mortem data 141 141 - Aggregated data ... ... @@ -144,7 +144,7 @@ 144 144 (% class="small" %)//If you have human data that does not classify as any of the above, please get in touch and we will clarify the available options. // 145 145 ))) 146 146 147 -Human subjectdata shared on EBRAINS must comply with [[GDPR >>https://gdpr-info.eu/]]and [[EU directives>>https://eur-lex.europa.eu/legal-content/EN/TXT/?uri=celex%3A32010L0063]]. The information we need to assess this is collected via our [[Ethics and Regulatory Compliance Survey>>https://nettskjema.no/a/224765]].145 +Human data shared on EBRAINS must comply with [[GDPR >>https://gdpr-info.eu/]]and [[EU directives>>https://eur-lex.europa.eu/legal-content/EN/TXT/?uri=celex%3A32010L0063]]. The information we need to assess this is collected via our [[Ethics and Regulatory Compliance Survey>>https://nettskjema.no/a/224765]]. 148 148 149 149 Post-mortem and aggregated human data can be shared openly, given direct identifiers in the metadata are removed. Strongly pseudonymized and de-identified data can be shared via the Human Data Gateway (HDG). 150 150