Attention: The EBRAINS drive will be unavailable for most of the weekend starting the 25th October. Although the Lab is availble while the Drive is down, files that are stored in the Drive will not be loaded and you will be unable to save documents directly on the Lab.


Changes for page data-curation-copy

Last modified by eapapp on 2023/07/04 16:46
From version 158.1
edited by ingrreit
on 2023/06/05 10:49
Change comment: There is no comment for this version
To version 156.1
edited by ingrreit
on 2023/06/05 10:47
Change comment: There is no comment for this version

Summary

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70 70  
71 71  This form collects the necessary information needed for us to evaluate whether we can ethically and legally share the data via EBRAINS.
72 72  
73 -See below for information about the ethical and legal aspects concerning sharing of human subject data.
74 74  
75 -
76 76  ==== **2. Upload data ** ====
77 77  
78 78  
... ... @@ -131,7 +131,7 @@
131 131  
132 132  ----
133 133  
134 -==== **Sharing human subject data ** ====
132 +==== **Sharing human data ** ====
135 135  
136 136  (% class="box floatinginfobox" %)
137 137  (((
... ... @@ -144,7 +144,7 @@
144 144  (% class="small" %)//If you have human data that does not classify as any of the above, please get in touch and we will clarify the available options. //
145 145  )))
146 146  
147 -Human subject data shared on EBRAINS must comply with [[GDPR >>https://gdpr-info.eu/]]and [[EU directives>>https://eur-lex.europa.eu/legal-content/EN/TXT/?uri=celex%3A32010L0063]]. The information we need to assess this is collected via our [[Ethics and Regulatory Compliance Survey>>https://nettskjema.no/a/224765]].
145 +Human data shared on EBRAINS must comply with [[GDPR >>https://gdpr-info.eu/]]and [[EU directives>>https://eur-lex.europa.eu/legal-content/EN/TXT/?uri=celex%3A32010L0063]]. The information we need to assess this is collected via our [[Ethics and Regulatory Compliance Survey>>https://nettskjema.no/a/224765]].
148 148  
149 149  Post-mortem and aggregated human data can be shared openly, given direct identifiers in the metadata are removed. Strongly pseudonymized and de-identified data can be shared via the Human Data Gateway (HDG).
150 150