Changes for page data-curation-copy

Last modified by eapapp on 2023/07/04 16:46

From version 167.1
edited by eapapp
on 2023/06/06 13:46
Change comment: There is no comment for this version
To version 169.1
edited by spieschnik
on 2023/06/06 14:47
Change comment: There is no comment for this version

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1 -XWiki.eapapp
1 +XWiki.spieschnik
Content
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80 80  //with all you need to know//
81 81  //to share data on EBRAINS: //
82 82  // //
83 -[[[[image:image-20230324171114-2.png||height="150" width="106"]]>>https://drive.ebrains.eu/f/dfd374b9b43a458192e9/]]//
83 +[[[[image:image-20230324171114-2.png||height="150" width="106"]]>>https://drive.ebrains.eu/f/dfd374b9b43a458192e9/]]
84 +
85 +
84 84  )))
85 85  
86 86  
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146 146  
147 147  Journal publications sufficiently describing the shared data, such as made available through [[Nature Scientific Data>>http://www.nature.com/sdata/about]], [[Elsevier Data in Brief>>http://www.journals.elsevier.com/data-in-brief/]], [[BMC Data note>>https://bmcresnotes.biomedcentral.com/submission-guidelines/preparing-your-manuscript/data-note]] and more, can replace the EBRAINS Data Descriptor.
148 148  
149 -==== [[[[image:image-20230324171109-1.png||height="150" width="106"]]>>https://drive.ebrains.eu/f/c1ccb78be52e4bdba7cf/]]//The EBRAINS Data descriptor at-a-glance// ====
151 +(% class="box floatinginfobox" id="data-descriptor-infographic" %)
152 +(((
153 +(% style="text-align:center" %)
154 +//Download our infographic: //
155 +//The EBRAINS Data//
156 +//Descriptor at a glance//
157 +// //
158 +[[[[image:image-20230324171109-1.png||height="150" width="106"]]>>https://drive.ebrains.eu/f/c1ccb78be52e4bdba7cf/]]
159 +
160 +)))
150 150  
151 -
152 152  ==== **5. Preview and publish ** ====
153 153  
154 154  
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162 162  (% class="box floatinginfobox" %)
163 163  (((
164 164  **Human subject data that can be shared on EBRAINS:**
175 +// //
176 +// - Post-mortem data//
177 +// - Aggregated data//
178 +// - Strongly pseudonymized or de-identified subject data//
179 +// with a legal basis for sharing (e.g. Informed Consent)//
180 +// //
165 165  
166 -- Post-mortem data
167 -- Aggregated data
168 -- Strongly pseudonymized or de-identified subject data with a legal basis for sharing (e.g. Informed Consent)
169 -
170 -(% class="small" %)//If you have human data that does not classify as any of the above, please get in touch and we will clarify the available options. //
182 +(% class="small" %)
183 +//If you have human data that does not qualify as any of the above,//
184 +//please [[get in touch>>https://www.ebrains.eu/contact/]] and we will clarify the available options.//
171 171  )))
172 172  
173 173  Human subject data shared on EBRAINS must comply with [[GDPR >>https://gdpr-info.eu/]]and [[EU directives>>https://eur-lex.europa.eu/legal-content/EN/TXT/?uri=celex%3A32010L0063]]. The information we need to assess this is collected via our [[Ethics and Regulatory Compliance Survey>>https://nettskjema.no/a/224765]].
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292 292  Phd Student
293 293  Sensors and Cognitive Psychology (M. Sc.)(%%)
294 294  (% class="small" style="--darkreader-inline-color:#d3cbbf; color:#4a5568" %)**Human-Computer Interaction**
295 -)))|(% style="width:303px" %)(((
309 +)))|(% style="width:328px" %)(((
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298 298  
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300 300  
301 301  
302 302  
303 -
304 -
305 -
306 -
307 -
308 308  **Lyuba Zehl**
309 309  
310 310  (% class="small" %)Knowledge Systems Engineer
311 311  Dr. rer. nat. (Systems Neuroscience)(%%)
312 312  (% class="small" style="--darkreader-inline-color:#d3cbbf; color:#4a5568" %)**Standard development, data & knowledge management, interdisciplinary communication, data analysis**
313 -)))|(% style="width:303px" %) |
322 +)))|(% style="width:321px" %) |(% style="width:324px" %)
314 314  
315 315  ----
316 316  
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372 372  ==== ====
373 373  
374 374  (((
375 ->The curation process is time consuming and difficult
384 +>Is the curation process time consuming and difficult?
376 376  )))
377 377  )))
378 378  
388 +
379 379  (% class="wikigeneratedid" id="HHowcanIshareA0models3F" %)
380 -Publishing your data naturally takes some time and effort but we will support you as much as possible. If communication is on a regular basis, we are able to finish basic curation - from the initial contact to dataset release - within two weeks.
390 +No, if communication is on a regular basis, we are able to finish curation within two weeks. Publishing your data naturally takes some effort but we will support you as much as possible.
381 381  
382 ->Sharing my data is not beneficial for me - only for others
392 +>Is sharing my data also beneficial for me or only for others?
383 383  
384 384  
385 385  When you publish your data via EBRAINS, we provide comprehensive data management support and safe long term storage - all free of charge. Additionally, your data can be cited, just like a scientific journal article. Sharing your data may even lead to new funding opportunities. Many funders specifically support projects that are part of the “Open Science” initiative.
386 386  
387 ->My data is too insignificant to share
397 +>Can my data be too insignificant to share?
388 388  
389 389  
390 -There is no such thing as insignificant data. Data that is considered insignificant for a given topic, may have great significance for another. By making “insignificant” data publicly available, other researchers may find something interesting that was off-topic for your own purposes.
400 +No, there is no such thing as insignificant data. Data that is considered insignificant for a given topic, may have great significance for another. By making “insignificant” data publicly available, other researchers may find something interesting that was off-topic for your own purposes.
391 391  
392 ->My data can easily be misused if I share it with the world
402 +>Can my data be easily misused if I share it?
393 393  
394 394  
395 -Your data will be covered by a Creative Commons license of your choice. There are a variety of licenses available, enabling you to prevent use for specific purposes, e.g. commercial use.
405 +No, your data will be covered by a Creative Commons license of your choice. There are a variety of licenses available, enabling you to prevent use for specific purposes, e.g. commercial use.
396 396  
397 ->I don't think I'm allowed to share my data
407 +>Can I share my data before my paper is published?
398 398  
399 399  
400 -Many institutions are still very careful about what can be shared and how, but the situation is constantly evolving. As a researcher providing data, you will be asked to fill out an ethics compliance survey which survey to ensure that data published through the EBRAINS platform has been collected according to EU regulations. We are working on solutions for sharing anonymised human data that complies with GDPR standards to protect the identity of research subjects.
410 +Yes, if you do not want to share your data before publishing the results in an article, you can publish your dataset with an embargo status. This will make it possible to find information about the data without making the data itself available, and give you a citeable DOI.
401 401  
402 ->I can't share my data before my paper is published
412 +>Can I lose my competitive edge if I share my data before I publish the associated paper?
403 403  
404 404  
405 -If you do not want to share your data before publishing the results in an article, you can publish your dataset with an embargo status. This will make it possible to find information about the data without making the data itself available, and give you a citeable DOI.
415 +No, publishing your data does not mean that others can use it however they want. Use of your data will require citation, and by choosing an appropriate Creative Commons licence you decide what others are allowed to do with it. If you still feel worried, you can publish your data under embargo, and in this way delay the date of data release, but still make it possible for others to find the information about the data.
406 406  
407 ->If I share my data before I publish the associated paper, I will lose my competitive edge
408 408  
409 -
410 -Publishing your data does not mean that others can use it however they want. Use of your data will require citation, and by choosing an appropriate Creative Commons licence you decide what others are allowed to do with it. If you still feel worried, you can publish your data under embargo, and in this way delay the date of data release, but still make it possible for others to find the information about the data.
411 -
412 -
413 413  ----
414 414  
415 415  == Contact ==