Changes for page data-curation-copy

Last modified by eapapp on 2023/07/04 16:46

From version 168.2
edited by spieschnik
on 2023/06/06 14:46
Change comment: There is no comment for this version
To version 166.1
edited by eapapp
on 2023/06/06 11:30
Change comment: There is no comment for this version

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Author
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1 -XWiki.spieschnik
1 +XWiki.eapapp
Content
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73 73  
74 74  [[image:image-20230326054341-1.png]]
75 75  
76 -(% class="box floatinginfobox" id="share-data-infographic" %)
77 -(((
78 -(% style="text-align:center" %)
79 -//Download our infographic//
80 -//with all you need to know//
81 -//to share data on EBRAINS: //
82 -// //
83 -[[[[image:image-20230324171114-2.png||height="150" width="106"]]>>https://drive.ebrains.eu/f/dfd374b9b43a458192e9/]]
76 +==== [[[[image:image-20230324171114-2.png||height="150" width="106"]]>>https://drive.ebrains.eu/f/dfd374b9b43a458192e9/]]//All you need to know to share data on EBRAINS.// ====
84 84  
85 -
86 -)))
87 87  
88 -
89 89  ==== **1. Provide some general information about your dataset** ====
90 90  
91 91  
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148 148  
149 149  Journal publications sufficiently describing the shared data, such as made available through [[Nature Scientific Data>>http://www.nature.com/sdata/about]], [[Elsevier Data in Brief>>http://www.journals.elsevier.com/data-in-brief/]], [[BMC Data note>>https://bmcresnotes.biomedcentral.com/submission-guidelines/preparing-your-manuscript/data-note]] and more, can replace the EBRAINS Data Descriptor.
150 150  
151 -(% class="box floatinginfobox" id="data-descriptor-infographic" %)
152 -(((
153 -(% style="text-align:center" %)
154 -//Download our infographic: //
155 -//The EBRAINS Data//
156 -//Descriptor at a glance//
157 -// //
158 -[[[[image:image-20230324171109-1.png||height="150" width="106"]]>>https://drive.ebrains.eu/f/c1ccb78be52e4bdba7cf/]]
159 -
160 -)))
141 +==== [[[[image:image-20230324171109-1.png||height="150" width="106"]]>>https://drive.ebrains.eu/f/c1ccb78be52e4bdba7cf/]]//The EBRAINS Data descriptor at-a-glance// ====
161 161  
143 +
162 162  ==== **5. Preview and publish ** ====
163 163  
164 164  
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172 172  (% class="box floatinginfobox" %)
173 173  (((
174 174  **Human subject data that can be shared on EBRAINS:**
175 -// //
176 -// - Post-mortem data//
177 -// - Aggregated data//
178 -// - Strongly pseudonymized or de-identified subject data//
179 -// with a legal basis for sharing (e.g. Informed Consent)//
180 -// //
181 181  
182 -(% class="small" %)
183 -//If you have human data that does not qualify as any of the above,//
184 -//please [[get in touch>>https://www.ebrains.eu/contact/]] and we will clarify the available options.//
158 +- Post-mortem data
159 +- Aggregated data
160 +- Strongly pseudonymized or de-identified subject data with a legal basis for sharing (e.g. Informed Consent)
161 +
162 +(% class="small" %)//If you have human data that does not classify as any of the above, please get in touch and we will clarify the available options. //
185 185  )))
186 186  
187 187  Human subject data shared on EBRAINS must comply with [[GDPR >>https://gdpr-info.eu/]]and [[EU directives>>https://eur-lex.europa.eu/legal-content/EN/TXT/?uri=celex%3A32010L0063]]. The information we need to assess this is collected via our [[Ethics and Regulatory Compliance Survey>>https://nettskjema.no/a/224765]].
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306 306  Phd Student
307 307  Sensors and Cognitive Psychology (M. Sc.)(%%)
308 308  (% class="small" style="--darkreader-inline-color:#d3cbbf; color:#4a5568" %)**Human-Computer Interaction**
309 -)))|(% style="width:328px" %)(((
287 +)))|(% style="width:303px" %)(((
310 310  
311 311  
312 312  
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324 324  (% class="small" %)Knowledge Systems Engineer
325 325  Dr. rer. nat. (Systems Neuroscience)(%%)
326 326  (% class="small" style="--darkreader-inline-color:#d3cbbf; color:#4a5568" %)**Standard development, data & knowledge management, interdisciplinary communication, data analysis**
327 -)))|(% style="width:321px" %) |(% style="width:324px" %)
305 +)))|(% style="width:303px" %) |
328 328  
329 329  ----
330 330  
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386 386  ==== ====
387 387  
388 388  (((
389 ->Is the curation process time consuming and difficult?
367 +>The curation process is time consuming and difficult
390 390  )))
391 391  )))
392 392  
393 -
394 394  (% class="wikigeneratedid" id="HHowcanIshareA0models3F" %)
395 -No, if communication is on a regular basis, we are able to finish curation within two weeks. Publishing your data naturally takes some effort but we will support you as much as possible.
372 +Publishing your data naturally takes some time and effort but we will support you as much as possible. If communication is on a regular basis, we are able to finish basic curation - from the initial contact to dataset release - within two weeks.
396 396  
397 ->Is sharing my data also beneficial for me or only for others?
374 +>Sharing my data is not beneficial for me - only for others
398 398  
399 399  
400 400  When you publish your data via EBRAINS, we provide comprehensive data management support and safe long term storage - all free of charge. Additionally, your data can be cited, just like a scientific journal article. Sharing your data may even lead to new funding opportunities. Many funders specifically support projects that are part of the “Open Science” initiative.
401 401  
402 ->Can my data be too insignificant to share?
379 +>My data is too insignificant to share
403 403  
404 404  
405 -No, there is no such thing as insignificant data. Data that is considered insignificant for a given topic, may have great significance for another. By making “insignificant” data publicly available, other researchers may find something interesting that was off-topic for your own purposes.
382 +There is no such thing as insignificant data. Data that is considered insignificant for a given topic, may have great significance for another. By making “insignificant” data publicly available, other researchers may find something interesting that was off-topic for your own purposes.
406 406  
407 ->Can my data be easily misused if I share it?
384 +>My data can easily be misused if I share it with the world
408 408  
409 409  
410 -No, your data will be covered by a Creative Commons license of your choice. There are a variety of licenses available, enabling you to prevent use for specific purposes, e.g. commercial use.
387 +Your data will be covered by a Creative Commons license of your choice. There are a variety of licenses available, enabling you to prevent use for specific purposes, e.g. commercial use.
411 411  
412 ->Can I share my data before my paper is published?
389 +>I don't think I'm allowed to share my data
413 413  
414 414  
415 -Yes, if you do not want to share your data before publishing the results in an article, you can publish your dataset with an embargo status. This will make it possible to find information about the data without making the data itself available, and give you a citeable DOI.
392 +Many institutions are still very careful about what can be shared and how, but the situation is constantly evolving. As a researcher providing data, you will be asked to fill out an ethics compliance survey which survey to ensure that data published through the EBRAINS platform has been collected according to EU regulations. We are working on solutions for sharing anonymised human data that complies with GDPR standards to protect the identity of research subjects.
416 416  
417 ->Can I lose my competitive edge if I share my data before I publish the associated paper?
394 +>I can't share my data before my paper is published
418 418  
419 419  
420 -No, publishing your data does not mean that others can use it however they want. Use of your data will require citation, and by choosing an appropriate Creative Commons licence you decide what others are allowed to do with it. If you still feel worried, you can publish your data under embargo, and in this way delay the date of data release, but still make it possible for others to find the information about the data.
397 +If you do not want to share your data before publishing the results in an article, you can publish your dataset with an embargo status. This will make it possible to find information about the data without making the data itself available, and give you a citeable DOI.
421 421  
399 +>If I share my data before I publish the associated paper, I will lose my competitive edge
422 422  
401 +
402 +Publishing your data does not mean that others can use it however they want. Use of your data will require citation, and by choosing an appropriate Creative Commons licence you decide what others are allowed to do with it. If you still feel worried, you can publish your data under embargo, and in this way delay the date of data release, but still make it possible for others to find the information about the data.
403 +
404 +
423 423  ----
424 424  
425 425  == Contact ==