Changes for page data-curation-copy

Last modified by eapapp on 2023/07/04 16:46

From 167.1 to 166.1 From 170.1 to 169.1

From version 169.1

edited by spieschnik
on 2023/06/06 14:47

Change comment: There is no comment for this version

To version 167.1

edited by eapapp
on 2023/06/06 13:46

Change comment: There is no comment for this version

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--XWiki.spieschnik
++XWiki.eapapp

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@@ -80,9 +80,7 @@
  //with all you need to know//
  //to share data on EBRAINS: //
  // //
--[[[[image:image-20230324171114-2.png||height="150" width="106"]]>>https://drive.ebrains.eu/f/dfd374b9b43a458192e9/]]
--
--
++[[[[image:image-20230324171114-2.png||height="150" width="106"]]>>https://drive.ebrains.eu/f/dfd374b9b43a458192e9/]]//
  )))
@@ -148,17 +148,9 @@
  Journal publications sufficiently describing the shared data, such as made available through [[Nature Scientific Data>>http://www.nature.com/sdata/about]], [[Elsevier Data in Brief>>http://www.journals.elsevier.com/data-in-brief/]], [[BMC Data note>>https://bmcresnotes.biomedcentral.com/submission-guidelines/preparing-your-manuscript/data-note]] and more, can replace the EBRAINS Data Descriptor.
--(% class="box floatinginfobox" id="data-descriptor-infographic" %)
--(((
--(% style="text-align:center" %)
--//Download our infographic: //
--//The EBRAINS Data//
--//Descriptor at a glance//
--// //
--[[[[image:image-20230324171109-1.png||height="150" width="106"]]>>https://drive.ebrains.eu/f/c1ccb78be52e4bdba7cf/]]
--
--)))
++==== [[[[image:image-20230324171109-1.png||height="150" width="106"]]>>https://drive.ebrains.eu/f/c1ccb78be52e4bdba7cf/]]//The EBRAINS Data descriptor at-a-glance// ====
++
  ==== **5. Preview and publish ** ====
@@ -172,16 +172,12 @@
  (% class="box floatinginfobox" %)
  (((
  **Human subject data that can be shared on EBRAINS:**
--// //
--// - Post-mortem data//
--// - Aggregated data//
--// - Strongly pseudonymized or de-identified subject data//
--//   with a legal basis for sharing (e.g. Informed Consent)//
--// //
--(% class="small" %)
--//If you have human data that does not qualify as any of the above,//
--//please [[get in touch>>https://www.ebrains.eu/contact/]] and we will clarify the available options.//
++- Post-mortem data
++- Aggregated data
++- Strongly pseudonymized or de-identified subject data with a legal basis for sharing (e.g. Informed Consent)
++
++(% class="small" %)//If you have human data that does not classify as any of the above, please get in touch and we will clarify the available options. //
  )))
  Human subject data shared on EBRAINS must comply with [[GDPR >>https://gdpr-info.eu/]]and [[EU directives>>https://eur-lex.europa.eu/legal-content/EN/TXT/?uri=celex%3A32010L0063]]. The information we need to assess this is collected via our [[Ethics and Regulatory Compliance Survey>>https://nettskjema.no/a/224765]].
@@ -306,7 +306,7 @@
  Phd Student
  Sensors and Cognitive Psychology (M. Sc.)(%%)
  (% class="small" style="--darkreader-inline-color:#d3cbbf; color:#4a5568" %)**Human-Computer Interaction**
--)))|(% style="width:328px" %)(((
++)))|(% style="width:303px" %)(((
@@ -314,12 +314,17 @@
++
++
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  **Lyuba Zehl**
  (% class="small" %)Knowledge Systems Engineer
  Dr. rer. nat. (Systems Neuroscience)(%%)
  (% class="small" style="--darkreader-inline-color:#d3cbbf; color:#4a5568" %)**Standard development, data & knowledge management, interdisciplinary communication, data analysis**
--)))|(% style="width:321px" %) |(% style="width:324px" %)
++)))|(% style="width:303px" %) |
  ----
@@ -381,40 +381,44 @@
  ====  ====
  (((
-->Is the curation process time consuming and difficult?
++>The curation process is time consuming and difficult
  )))
  )))
--
  (% class="wikigeneratedid" id="HHowcanIshareA0models3F" %)
--No, if communication is on a regular basis, we are able to finish curation within two weeks. Publishing your data naturally takes some effort but we will support you as much as possible.
++Publishing your data naturally takes some time and effort but we will support you as much as possible. If communication is on a regular basis, we are able to finish basic curation - from the initial contact to dataset release - within two weeks.
-->Is sharing my data also beneficial for me or only for others?
++>Sharing my data is not beneficial for me - only for others
  When you publish your data via EBRAINS, we provide comprehensive data management support and safe long term storage - all free of charge. Additionally, your data can be cited, just like a scientific journal article. Sharing your data may even lead to new funding opportunities. Many funders specifically support projects that are part of the “Open Science” initiative.
-->Can my data be too insignificant to share?
++>My data is too insignificant to share
--No, there is no such thing as insignificant data. Data that is considered insignificant for a given topic, may have great significance for another. By making “insignificant” data publicly available, other researchers may find something interesting that was off-topic for your own purposes.
++There is no such thing as insignificant data. Data that is considered insignificant for a given topic, may have great significance for another. By making “insignificant” data publicly available, other researchers may find something interesting that was off-topic for your own purposes.
-->Can my data be easily misused if I share it?
++>My data can easily be misused if I share it with the world
--No, your data will be covered by a Creative Commons license of your choice. There are a variety of licenses available, enabling you to prevent use for specific purposes, e.g. commercial use.
++Your data will be covered by a Creative Commons license of your choice. There are a variety of licenses available, enabling you to prevent use for specific purposes, e.g. commercial use.
-->Can I share my data before my paper is published?
++>I don't think I'm allowed to share my data
--Yes, if you do not want to share your data before publishing the results in an article, you can publish your dataset with an embargo status. This will make it possible to find information about the data without making the data itself available, and give you a citeable DOI.
++Many institutions are still very careful about what can be shared and how, but the situation is constantly evolving. As a researcher providing data, you will be asked to fill out an ethics compliance survey which survey to ensure that data published through the EBRAINS platform has been collected according to EU regulations. We are working on solutions for sharing anonymised human data that complies with GDPR standards to protect the identity of research subjects.
-->Can I lose my competitive edge if I share my data before I publish the associated paper?
++>I can't share my data before my paper is published
--No, publishing your data does not mean that others can use it however they want. Use of your data will require citation, and by choosing an appropriate Creative Commons licence you decide what others are allowed to do with it. If you still feel worried, you can publish your data under embargo, and in this way delay the date of data release, but still make it possible for others to find the information about the data.
++If you do not want to share your data before publishing the results in an article, you can publish your dataset with an embargo status. This will make it possible to find information about the data without making the data itself available, and give you a citeable DOI.
++>If I share my data before I publish the associated paper, I will lose my competitive edge
++
++Publishing your data does not mean that others can use it however they want. Use of your data will require citation, and by choosing an appropriate Creative Commons licence you decide what others are allowed to do with it. If you still feel worried, you can publish your data under embargo, and in this way delay the date of data release, but still make it possible for others to find the information about the data.
++
++
  ----
  == Contact ==