Changes for page data-curation-copy

Last modified by eapapp on 2023/07/04 16:46
From version 196.1
edited by adavison
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To version 205.1
edited by ingrreit
on 2023/07/04 14:27
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17 17  {{/html}}
18 18  
19 19  
20 -== Publishing neuroscience data, models and software via EBRAINS ==
20 +(% class="wikigeneratedid" id="HPublishingneurosciencedata2CmodelsandsoftwareviaEBRAINS" %)
21 +(% style="font-size:2em" %)**Publishing neuroscience data, models and software via EBRAINS**
21 21  
22 -
23 23  (% class="wikigeneratedid" %)
24 24  The aim of this collab is to provide you with detailed information about publishing data, simulations, computational models, and software via EBRAINS. If you want a quick overview of the sharing process, see [[https:~~/~~/ebrains.eu/service/share-data>>https://ebrains.eu/service/share-data]].
25 25  
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83 83  //to share data on EBRAINS: //
84 84  // //
85 85  [[[[image:image-20230324171114-2.png||height="150" width="106"]]>>https://drive.ebrains.eu/f/dfd374b9b43a458192e9/]]
86 -
87 -
88 88  )))
89 89  
90 90  
... ... @@ -106,10 +106,20 @@
106 106  
107 107  ==== **2. Upload data ** ====
108 108  
107 +(% class="box floatinginfobox" id="share-data-infographic" %)
108 +(((
109 +(% style="text-align:center" %)
110 +//Download our infographic//
111 +//with guidelines
112 +on data organization: //
109 109  
114 +(% style="text-align:center" %)
115 +[[[[image:image-20230621121014-1.png||height="150" width="106"]]>>https://drive.ebrains.eu/lib/f5cf4964-f095-49bd-8c34-e4ffda05a497/file/ebrains-infographic-data-organisation.pdf/]]
116 +)))
117 +
110 110  (% style="margin-right:10px" %)[[image:https://lh5.googleusercontent.com/sieKO-kW8O18iPaUyonwyo4UfHBmtc2E9BDnjbx52j6J_uGmm-OzGAo7sloMk3sYwKa6QW3hYQsOA9N4H7uGQpca088Wrk0Nurpt_J3B0-NSbcaPNdZIh21otQcG6jnAxLGiKoEvkTyaDGTMk3fu7me8mQ=s2048||height="94px;" width="94px;"]](%%)**Ensure data is structured consistently prior to upload. **
111 111  
112 -We look for organized data, not organized according to our standard. This is to support the broadest degree of sharing possible. We do however require that the data is organized in a consistent and precise manner. Please see our// //[[collection of guidelines on data organization>>https://drive.ebrains.eu/smart-link/25299f04-c4e5-4028-8f5f-3b8208f9a532/]] for further guidance.
120 +We look for organized data, not organized according to our standard. This is to support the broadest degree of sharing possible. We do however require that the data is organized in a consistent and precise manner. Please see our// //[[guidelines on data organization>>https://drive.ebrains.eu/smart-link/25299f04-c4e5-4028-8f5f-3b8208f9a532/]] for further guidance.
113 113  
114 114  (% style="margin-right:10px" %)[[image:https://lh5.googleusercontent.com/EWtYwfVlbeC-jqPasgmzidqc50GrkKIEgwXeUeql8aaMHIukmFdWEy0nufVWWATbxDDK3XwwZEDmASrbpCsBk1u0HpAd8x4ZgAMsMPRcWyrb9etlV6FgKE_QN2e6SqKxHE0rzkR8uI1rRW_5z21TFGYVnw=s2048||height="91px;" width="91px;"]](%%)**Upload data to EBRAINS Storage, either using a drag-and-drop solution (opt. 1) or an interactive python script (opt. 2).**
115 115  
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157 157  (% class="box floatinginfobox" id="data-descriptor-infographic" %)
158 158  (((
159 159  (% style="text-align:center" %)
160 -//Download our infographic: //
161 -//The EBRAINS Data//
162 -//Descriptor at a glance//
168 +//Download our infographic
169 +about the EBRAINS Data//
170 +//Descriptor//
163 163  // //
164 164  [[[[image:image-20230324171109-1.png||height="150" width="106"]]>>https://drive.ebrains.eu/f/c1ccb78be52e4bdba7cf/]]
165 -
166 166  )))
167 167  
168 168  ==== **5. Preview and publish** ====
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173 173  Once a Curator has assembled the dataset in the EBRAINS Knowledge Graph, combining the data, metadata and data descriptor, the data provider will receive a private URL for previewing the dataset prior to release. We need an official approval from the data custodian{{footnote}}The Data Custodian is responsible for the content and quality of the Data and metadata, and is the person to be contacted by EBRAINS CS in case of any misconduct related to the Data. It is the obligation of a Data Custodian to keep EBRAINS informed about changes in the contact information of the authors of the Datasets provided by them ([[EBRAINS Data Provision Protocol - version 1.1>>https://strapi-prod.sos-ch-dk-2.exo.io/EBRAINS_Data_Provision_Protocol_dfe0dcb104.pdf]]).{{/footnote}} to release the dataset. Once released, a [[DataCite DOI>>https://datacite.org/]] will be generated for the dataset. If the identical data collection has received a DOI elsewhere, we recommend re-using the already issued DOI.
174 174  
175 175  
176 -----
177 177  
178 -==== ====
179 179  
180 -==== **Sharing human subject data** ====
181 -
182 -(% class="box floatinginfobox" %)
183 -(((
184 -**Human subject data that can be shared on EBRAINS:**
185 -// //
186 -// - Post-mortem data//
187 -// - Aggregated data//
188 -// - Strongly pseudonymized or de-identified subject data//
189 -// with a legal basis for sharing (e.g. Informed Consent)//
190 -// //
191 -
192 -(% class="small" %)
193 -//If you have human data that does not qualify as any of the above,//
194 -//please [[get in touch>>https://www.ebrains.eu/contact/]] and we will clarify the available options.//
195 -)))
196 -
197 -
198 -Human subject data shared on EBRAINS must comply with [[GDPR >>https://gdpr-info.eu/]]and [[EU directives>>https://eur-lex.europa.eu/legal-content/EN/TXT/?uri=celex%3A32010L0063]]. The information we need to assess this is collected via our [[Ethics and Regulatory Compliance Survey>>https://nettskjema.no/a/224765]].
199 -
200 -Post-mortem and aggregated human data can be shared openly, given direct identifiers in the metadata are removed. Strongly pseudonymized and de-identified data can be shared via the Human Data Gateway (HDG).
201 -
202 -The Human Data Gateway (HDG) was introduced in February 2021 as a response to the needs of multiple data providers who are bringing human subject data to EBRAINS. HDG covers the sharing of strongly pseudonymized or de-identified data, a limited range human subject data without direct identifiers and with very few indirect identifiers.
203 -
204 -The HDG adds an an authentication layer on top of the data. This means that **data users **must request access to the data (via their EBRAINS account) and will receive access provided they actively accept the [[EBRAINS Access Policy>>https://ebrains.eu/terms#access-policy]], the [[EBRAINS General Terms of Use>>https://ebrains.eu/terms#general-terms-of-use]], and the [[EBRAINS Data Use Agreement>>https://ebrains.eu/terms#data-use-agreement]]. The account holder also have to accept that information about their request and access to specific data under HDG is being tracked and stored. **Data owners** must be aware that sharing under the HDG affects the legal responsibilities for the data. They must agree to joint control of the data (see the [[Data Provision Protocol v1>>url:https://strapi-prod.sos-ch-dk-2.exo.io/EBRAINS_Data_Provision_Protocol_dfe0dcb104.pdf]], section 1.4 - 1.5) and the Data Protection Officers of the responsible institutions must have accepted that the data can be shared under HDG.
205 -
206 -The HDG is an extension of the existing services and does not replace the future EBRAINS Service for sensitive data (planned for 2024) which is outside the domain of the current EBRAINS Data and Knowledge services.
207 -
208 -
209 209  ----
210 210  
211 211  === Step by Step - Models ===
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288 288  
289 289  The curators will also take a snapshot of your model code.
290 290  
291 -* For models in public Git repositories, we archive a copy of the repository in [[Software Heritage>>https://www.softwareheritage.org/||rel=" noopener noreferrer" target="_blank"]].
267 +* For models in public Git repositories, we archive a copy of the repository in [[Software Heritage>>https://www.softwareheritage.org/||rel="noopener noreferrer" target="_blank"]].
292 292  * For models in a collab Bucket or Drive, we make a read-only copy of the code in a public container in the EBRAINS repository.
293 293  
294 294  Once this is done, you will be invited to review a preview of how the model entry will appear in the KG Search,
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320 320  
321 321  ----
322 322  
299 +=== Sharing human subject data ===
300 +
301 +(% class="box floatinginfobox" %)
302 +(((
303 +**Human subject data that can be shared on EBRAINS:**
304 +// //
305 +// - Post-mortem data//
306 +// - Aggregated data//
307 +// - Strongly pseudonymized or de-identified subject data//
308 +// with a legal basis for sharing (e.g. Informed Consent)//
309 +// //
310 +
311 +(% class="small" %)
312 +//If you have human data that does not qualify as any of the above,//
313 +//please [[get in touch>>https://www.ebrains.eu/contact/]] and we will clarify the available options.//
314 +)))
315 +
316 +
317 +Human subject data shared on EBRAINS must comply with [[GDPR >>https://gdpr-info.eu/]]and [[EU directives>>https://eur-lex.europa.eu/legal-content/EN/TXT/?uri=celex%3A32010L0063]]. The information we need to assess this is collected via our [[Ethics and Regulatory Compliance Survey>>https://nettskjema.no/a/224765]].
318 +
319 +Post-mortem and aggregated human data can be shared openly, given direct identifiers in the metadata are removed. Strongly pseudonymized and de-identified data can be shared via the Human Data Gateway (HDG).
320 +
321 +The Human Data Gateway (HDG) was introduced in February 2021 as a response to the needs of multiple data providers who are bringing human subject data to EBRAINS. HDG covers the sharing of strongly pseudonymized or de-identified data, a limited range human subject data without direct identifiers and with very few indirect identifiers.
322 +
323 +The HDG adds an an authentication layer on top of the data. This means that **data users **must request access to the data (via their EBRAINS account) and will receive access provided they actively accept the [[EBRAINS Access Policy>>https://ebrains.eu/terms#access-policy]], the [[EBRAINS General Terms of Use>>https://ebrains.eu/terms#general-terms-of-use]], and the [[EBRAINS Data Use Agreement>>https://ebrains.eu/terms#data-use-agreement]]. The account holder also have to accept that information about their request and access to specific data under HDG is being tracked and stored. **Data owners** must be aware that sharing under the HDG affects the legal responsibilities for the data. They must agree to joint control of the data (see the [[Data Provision Protocol v1>>url:https://strapi-prod.sos-ch-dk-2.exo.io/EBRAINS_Data_Provision_Protocol_dfe0dcb104.pdf]], section 1.4 - 1.5) and the Data Protection Officers of the responsible institutions must have accepted that the data can be shared under HDG.
324 +
325 +The HDG is an extension of the existing services and does not replace the future EBRAINS Service for sensitive data (planned for 2024) which is outside the domain of the current EBRAINS Data and Knowledge services.
326 +
327 +----
328 +
323 323  == **The openMINDS metadata framework** ==
324 324  
325 325  (% class="box floatinginfobox" %)
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344 344  The curators in EBRAINS are located in Oslo, Jülich, Trier and Paris. 
345 345  
346 346  
347 -**Located in Norway:**
353 +**Located in Norway**
348 348  
349 349  |(% style="width:303px" %)(((
350 350  [[image:My project2.jpg||height="209" width="167"]]
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394 394  )))| | |
395 395  
396 396  
397 -\\**Located in Germany:**
403 +\\**Located in Germany**
398 398  
399 399  |(% style="width:303px" %)(((
400 400  [[image:My project (2).jpg||height="209" width="167"]]
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405 405  Phd Student
406 406  Sensors and Cognitive Psychology (M. Sc.)(%%)
407 407  (% class="small" style="--darkreader-inline-color:#d3cbbf; color:#4a5568" %)**Human-Computer Interaction**
408 -)))|(% style="width:328px" %)(((
409 -
414 +)))|(% style="width:303px" %)(((
415 +[[image:Lyuba.jpg||height="209" width="167"]]
410 410  
411 -
412 -
413 -
414 -
415 -
416 -
417 -
418 418  **Lyuba Zehl**
419 419  
420 420  (% class="small" %)Knowledge Systems Engineer
421 421  Dr. rer. nat. (Systems Neuroscience)(%%)
422 422  (% class="small" style="--darkreader-inline-color:#d3cbbf; color:#4a5568" %)**Standard development, data & knowledge management, interdisciplinary communication, data analysis**
423 -)))|(% style="width:321px" %) |(% style="width:324px" %)
422 +)))|(% style="width:303px" %) |(% style="width:303px" %)
424 424  
425 425  ----
426 426  
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510 510  [[curation-support@ebrains.eu>>mailto:curation-support@ebrains.eu]]
511 511  
512 512  
512 +== Affiliated laboratories ==
513 +
514 +
515 +//Institute of Basic Medical Sciences,** **University of Oslo, Norway (PI: Jan G. Bjaalie, Trygve B. Leergaard)//
516 +
517 +//Human-Computer Interaction, University of Trier, Germany  //
518 +
519 +//Institute of Neuroscience and Medicine (INM-1), Research Centre Jülich, Germany (PI: Timo Dicksheid)//
520 +
521 +
513 513  == References ==
514 514  
515 515  {{putFootnotes/}}
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