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Changes for page Data Curation

Last modified by abonard on 2025/06/03 10:55

From version 155.1
edited by ingrreit
on 2023/06/05 10:46
Change comment: There is no comment for this version
To version 158.1
edited by ingrreit
on 2023/06/05 10:49
Change comment: There is no comment for this version

Summary

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70 70  
71 71  This form collects the necessary information needed for us to evaluate whether we can ethically and legally share the data via EBRAINS.
72 72  
73 +See below for information about the ethical and legal aspects concerning sharing of human subject data.
73 73  
75 +
74 74  ==== **2. Upload data ** ====
75 75  
76 76  
... ... @@ -129,11 +129,11 @@
129 129  
130 130  ----
131 131  
132 -==== **Sharing human data ** ====
134 +==== **Sharing human subject data ** ====
133 133  
134 134  (% class="box floatinginfobox" %)
135 135  (((
136 -**Human subject data that can be shared on EBRAINS consists of:**
138 +**Human subject data that can be shared on EBRAINS:**
137 137  
138 138  - Post-mortem data
139 139  - Aggregated data
... ... @@ -142,7 +142,7 @@
142 142  (% class="small" %)//If you have human data that does not classify as any of the above, please get in touch and we will clarify the available options. //
143 143  )))
144 144  
145 -Human data shared on EBRAINS must comply with [[GDPR >>https://gdpr-info.eu/]]and [[EU directives>>https://eur-lex.europa.eu/legal-content/EN/TXT/?uri=celex%3A32010L0063]]. The information we need to assess this is collected via our [[Ethics and Regulatory Compliance Survey>>https://nettskjema.no/a/224765]].
147 +Human subject data shared on EBRAINS must comply with [[GDPR >>https://gdpr-info.eu/]]and [[EU directives>>https://eur-lex.europa.eu/legal-content/EN/TXT/?uri=celex%3A32010L0063]]. The information we need to assess this is collected via our [[Ethics and Regulatory Compliance Survey>>https://nettskjema.no/a/224765]].
146 146  
147 147  Post-mortem and aggregated human data can be shared openly, given direct identifiers in the metadata are removed. Strongly pseudonymized and de-identified data can be shared via the Human Data Gateway (HDG).
148 148  
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Data Curation