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Changes for page Data Curation

Last modified by abonard on 2025/06/03 10:55

From version 158.1
edited by ingrreit
on 2023/06/05 10:49
Change comment: There is no comment for this version
To version 155.1
edited by ingrreit
on 2023/06/05 10:46
Change comment: There is no comment for this version

Summary

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Content
... ... @@ -70,9 +70,7 @@
70 70  
71 71  This form collects the necessary information needed for us to evaluate whether we can ethically and legally share the data via EBRAINS.
72 72  
73 -See below for information about the ethical and legal aspects concerning sharing of human subject data.
74 74  
75 -
76 76  ==== **2. Upload data ** ====
77 77  
78 78  
... ... @@ -131,11 +131,11 @@
131 131  
132 132  ----
133 133  
134 -==== **Sharing human subject data ** ====
132 +==== **Sharing human data ** ====
135 135  
136 136  (% class="box floatinginfobox" %)
137 137  (((
138 -**Human subject data that can be shared on EBRAINS:**
136 +**Human subject data that can be shared on EBRAINS consists of:**
139 139  
140 140  - Post-mortem data
141 141  - Aggregated data
... ... @@ -144,7 +144,7 @@
144 144  (% class="small" %)//If you have human data that does not classify as any of the above, please get in touch and we will clarify the available options. //
145 145  )))
146 146  
147 -Human subject data shared on EBRAINS must comply with [[GDPR >>https://gdpr-info.eu/]]and [[EU directives>>https://eur-lex.europa.eu/legal-content/EN/TXT/?uri=celex%3A32010L0063]]. The information we need to assess this is collected via our [[Ethics and Regulatory Compliance Survey>>https://nettskjema.no/a/224765]].
145 +Human data shared on EBRAINS must comply with [[GDPR >>https://gdpr-info.eu/]]and [[EU directives>>https://eur-lex.europa.eu/legal-content/EN/TXT/?uri=celex%3A32010L0063]]. The information we need to assess this is collected via our [[Ethics and Regulatory Compliance Survey>>https://nettskjema.no/a/224765]].
148 148  
149 149  Post-mortem and aggregated human data can be shared openly, given direct identifiers in the metadata are removed. Strongly pseudonymized and de-identified data can be shared via the Human Data Gateway (HDG).
150 150  
Public

Data Curation