Attention: The EBRAINS Wiki will be down Monday 24th November, from 17:00 CEST for up to 1h for maintenance 


Changes for page Data Curation

Last modified by spieschnik on 2025/11/24 12:16

From version 231.1
edited by spieschnik
on 2025/11/17 10:42
Change comment: There is no comment for this version
To version 234.1
edited by spieschnik
on 2025/11/24 12:16
Change comment: There is no comment for this version

Summary

Details

Page properties
Content
... ... @@ -286,24 +286,20 @@
286 286  (% class="box floatinginfobox" %)
287 287  (((
288 288  **Human subject data that can be shared on EBRAINS:**
289 -// //
290 -
291 291  // - Anonymized data//
292 292  // - Post-mortem data//
293 293  // - Aggregated data //
294 294  
295 295  
296 -(% class="small" %)
297 297  //If you have human data that does not qualify as any of the above,//
298 298  //please [[get in touch>>https://www.ebrains.eu/contact/]] and we will clarify the available options.//
299 299  )))
300 300  
298 +Human subject data shared on EBRAINS must comply with the [[GDPR >>https://gdpr-info.eu/]].The necessary information to assess this compliance is collected via our [[curation request form>>https://www.ebrains.eu/tools/ebrains-curation-request-form]].
301 301  
302 -Human subject data shared on EBRAINS must comply with the [[GDPR >>https://gdpr-info.eu/]]and relevant [[EU directives>>https://eur-lex.europa.eu/legal-content/EN/TXT/?uri=celex%3A32010L0063]]. The necessary information to assess this compliance is collected via our [[curation request form>>https://www.ebrains.eu/tools/ebrains-curation-request-form]].
303 -
304 304  Anonymous data, including post-mortem and aggregated data, can be shared openly on the condition that subject identifiers are removed from the metadata. Such identifiers must not be shared with the curation team when submitting metadata for curation.
305 305  
306 -Identifiable or sensitive data are shared under restricted access and cannot be stored on the EBRAINS data storage. While the dataset as a whole is discoverable through anonymous metadata published on EBRAINS, access to the actual data files is managed via [[EBRAINS Trusted Research Environments>>https://wiki.ebrains.eu/bin/view/Collabs/trusted-research-environments]]. The data custodian is required to comply with the[[ EBRAINS special terms for restricted access datasets>>https://drive.ebrains.eu/f/5a9bb3bd048446ae8ef6/?dl=1]].
302 +Identifiable or sensitive data are shared under restricted access and cannot be stored on the EBRAINS data storage. While the dataset as a whole is discoverable through anonymous metadata published on EBRAINS, access to the actual data files is managed via the [[EBRAINS Trusted Research Environments>>https://wiki.ebrains.eu/bin/view/Collabs/trusted-research-environments]]. The data custodian is required to comply with the[[ EBRAINS special terms for restricted access datasets>>https://drive.ebrains.eu/f/5a9bb3bd048446ae8ef6/?dl=1]].
307 307  
308 308  ----
309 309  
Public

Data Curation