Wiki source code of HCP-DPA

Version 19.1 by michaels on 2023/04/21 09:29

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michaels 7.1 5 = Data Processing Agreement for HCP Young Adult Connectomes =
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michaels 17.1 13 Use and access of the HCP Young Adult Connectomes data set is governed by the permissions, rules and obligations set out in the accompanying
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15 * [[Data Processing Agreement>>https://gdpr.eu/what-is-data-processing-agreement/]] (please see below)
16 * [[Creative Commons License>>https://creativecommons.org/licenses/by-sa/4.0/]]
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michaels 1.1 18 = What can I find here? =
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michaels 19.1 20 * The [[Drive>>https://wiki.ebrains.eu/bin/view/Collabs/hcp-dpa/Drive]] of this collab contains a pre-filled DPA for the [[HCP Young Adult Dataset>>https://search.kg.ebrains.eu/live/88507924-8509-419f-8900-109accf1414b]]. **Important: to enter the Drive you need to be logged in.**
michaels 10.1 21 * The agreement is made between controllers and processors of the data set, mutually assuring compliance with the [[General Data Protection Regulation>>https://commission.europa.eu/law/law-topic/data-protection_en]].
michaels 15.1 22 * The data is shared via the Virtual Research Environment at [[Charité – Universitätsmedizin Berlin>>https://www.bihealth.org/en/translation/network/digital-medicine/bihcharite-virtual-research-environment]]. Prospective Processors fill the pre-filled DPA as described below and send it to the controller to form a data processing agreement as legal basis for processing under GDPR.
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24 == Process ==
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michaels 16.1 26 * Prospective Processors fill the pre-filled DPA in the [[Drive>>https://wiki.ebrains.eu/bin/view/Collabs/hcp-dpa/Drive]] of this Collab with their information. Specifically, they enter 
michaels 10.1 27 ** Annex I:
michaels 11.1 28 *** Names and Addresses of all Prospective Processors
michaels 10.1 29 *** Contact information of the responsible institutional Data Protection Officer
michaels 13.1 30 *** Signature (either by printing and scanning or with a valid digital signature)
michaels 10.1 31 ** Annex II: Duration of the processing
32 ** Annex III: Prospective Processors add to the list of technical and organisational measures carried out to ensure the security of the data, particularly in regard to the safety of the processing after downloading and decrypting the data.
michaels 13.1 33 * Prospective Processors send the signed document to the controller (michael.schirner@bih-charite.de and petra.ritter@bih-charite.de) which will evaluate and sign the agreement and arrange the transmission of the data.
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35 == License note ==
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michaels 15.1 37 We explicitly grant re-use of the overall dataset under the Creative Commons License [[Attribution-ShareAlike 4.0 International>>http://creativecommons.org/licenses/by-sa/4.0/]]. The license explicitly grants reuse of all non-personal aspects of the dataset. Importantly, the personal data contained within this data set is governed by the [[EU General Data Protection Regulation.>>https://commission.europa.eu/law/law-topic/data-protection_en]] As a consequence, the license only applies to non-personal aspects of the dataset, for example, relating to the structure and organization of the dataset or the way the dataset was produced, but not to the personal information contained within the dataset.
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39 == Reference publication ==
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41 Data access will be provided when the related publication “XYZ by XYZ” is published.
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47 {{box title="**Contents**"}}
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HCP-DPA